We’re doing something different this week. I’ve got the first in a series of interviews with you from some of my blogger friends. I wanted to introduce you to them and their blogs, and I also wanted to get some conversations going about disability and accessibility, bringing in some different perspectives.
I’ve been following Gemma’s blog for a while. I can’t remember how I initially found her – I think it was a blogging group, but I enjoy reading her blog – not just because she enjoys cheese as much as I do, but because her blog makes me smile, and it also makes me think. I hadn’t considered some of the access issues that wheelchair users face on a day-to-day basis. Ok, I guess we can all think of how the lack of step-free access is a dealbreaker if you want to go somewhere, but Gemma has also got me thinking about things like the height of product displayss, and how the type of table at a restaurant can affect how accessible it is to use. (As a guide dog owner, I wasn’t a fan of those ones with the big round base either, but I’d never considered the problems they cause if you want to wheel right up to it).
Having said that, although many of our experiences and accessibility frustrations are different, there’s a lot that we have in common. Just wanting to be able to do the same things as our friends without having to plan everything in advance, or the frustration of jumping through extra hoops to get the same results. The assumtions that our friends are our carers, and the fact that we would love to see a world where we didn’t need to talk about accessibility and inclusion as much because they were built in to the design, not an afterthought.
So anyway, that’s enough from me – here are Gemma’s answers to my questions. Be sure to check her blog out as well.
1. What is the name of your blog and how did you come to decide on that name?
Wheelescapades is the name of my blog, one word. Although too many people like to refer to it as Wheel Escapades. It took me long enough to combine the two words (as you can see how creative it is. Ha!), so I do get frustrated.
The origin is fairly straightforward. Wheel – I’m a wheelchair user. Escapades – a type of adventure. Basically my life.
2. Why did you start writing a blog?
I’d considered blogging for quite a while before I plucked up the courage and took the plunge. I’ve never written anything in my life, that wasn’t essays in education and one line stories as a kid. Though I did want to be a journalist as a teen.
Friends had often joked that I should write about the dramas of my life, our social life. Dramas that mainly happened because of my wheels. Getting stuck in lifts, turning up at restaurants to find I’ve been seated up a step. ‘Oh it’s ok, we’ll help you up, lift your wheelchair’. No you won’t.
People assume my friends are carers, that they’re doing a good deed. They think that I cannot reply myself when asked if I enjoyed my meal. They ask the person with me ‘would you like a bag with that?’. I’ve got my own.
I wanted to raise awareness of disability and accessibility. That we are all just people with the same needs and dreams. I wanted to do this as a human, with a life and a personality. I wanted to make people think but laugh. I hope I do that.
3. If you could change one law to improve life for people with disabilities, what would it be?
I don’t even know where to start.
The Equality Act 2010 states that venues should ‘make reasonable adjustments’ to enable equal access for all. This is a start, but not enough. Who decides what reasonable is?
I long for a world I can access without thinking, without planning. I aim for spontaneity.
What would be great is if all venues and events had to state their accessibility online. I mean the finer details. No step. Step height. Door width. Lift. Lift size. Does it actually work. Accessible bathroom. Size. Facilities. Table height. Steps inside. Corridor width. Length.
This may seem trivial or picky, but this information would make a huge difference to the planning of my day. Because planning is a huge part of being disabled.
4. A friend is coming over for a relaxing evening. What will you be doing/eating/drinking/watching?
I’m not much of an evening person. More of a daytime socialiser. This will be a mid afternoon chill involving tea and cake.
I’m a Netflix binger, so whatever the latest drama season is will be our entertainment.
5. What’s something that you’ve learned since becoming a blogger?
I’ve learned that there are good people out there. Social media can be such an intimidating and judgemental place. The blogging community though, I’ve met some great people with so much support, motivation and kindness.
I’ve also learned I can have my say. Sometimes people find it interesting or useful, sometimes people can relate, sometimes they don’t.
I’ve learned I have a need to write.
6. If you could do any job for a day, what would it be and why?
This is a question that comes up in converse throughout life. I’ve always answered along the lines of Artist, Designer, Journalist. Something creative. Those are real jobs I’d love to do.
Recently I’ve thought a bit more about this, outside of my box a little. I’ve decided I’d choose to be an astronaut. Not only would going to space be pretty cool, but I’d like to know what it feels like to move my limbs freely. To be weightless.
I cannot lift my arms at all without support, so the idea of maybe scratching my head would be awesome.
7. What’s one thing you would like people to know about your disability, or people who have the same access needs as you?
I want people to be aware of Spinal Muscular Atrophy. I want them to know it’s not all about the wheels, but also it’s not the end of the world.
SMA means that I’m a wheelchair user, but it’s not the wheels I struggle with. It’s the weakness, the limited movement, the breathing difficulties.
Oh and people’s assumptions.
8. When was the last time you tried something new, and what was it?
I’ve not been very adventurous of late. But who knew chilli cheese hot cross buns could be a thing? An amazing thing that you all must try.
It’s not super recent, but last year I tried audiobooks for the first time ever. A whole new world of reading.
9. What does accessibility mean to you?
In obviously, daily life terms, it means ramps, wide doors, level pavements, working lifts, spacious rooms, hoists,
But really it means having equal access. Not being an afterthought. Not having to find a side entrance, traipse through a kitchen to get to a restaurant table. It means having a bathroom I can fit in that isn’t used as a storage cupboard.
In basic terms it means the ability to forget I’m disabled for a while.
10. What activities make you lose track of time?
I studied Art, Craft and Textiles at university to Masters Degree. I used to sew with my Nan and make stuff with old boxes. I’ve always enjoyed making something from nothing. Turning balls of wool into stuffed animals. Skeins of thread into cushion covers.
11. What’s one blog post (written by you) that you would like people to read?
I most enjoy writing my ‘If We Were Having Coffee’ posts as I get to have a little chat and rant about what’s going on in my life, disability related and not. Readers can get to know me a little better and chat back about what’s going on with them.
The one I think should be read though, is one of my most recent. I wrote this piece for Disabled Access Day. I feel access is misunderstood and thought to be either as simple as putting in a ramp, or so unachievable that it’s mind boggling.
12. Can you think of one or two bloggers that you think my readers should check out in addition to your blog?
Two of my greatest blogging pals.
Lorna at Gin & Lemonade. A fellow wheelchair user that often writes just what I’m thinking, but better than I think it.
And Caz at Invisibly me, whose posts are informative with a sprinkling of fun.
Places to find me
Thanks Gemma for answering my questions – it’s been great to find out a bit more about you.
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